My name is Kaz, I was diagnosed with Primary Progressive MS in late 2006/early 2007 when I was 28 years old. At the time of diagnosis, I was actually pleased and happy to find out what was wrong with me, my symptoms were really starting to confuse me.
So I then set out to find out more about the condition, as I knew very little about it. Actually truth be told, I knew nothing about it and was very ignorant towards it. I must admit, I didn't really see it as a big deal initially. However the more I read about the subject the more depressed I felt, it was shocking the kind of information that is out there.
I can understand the medical websites and Dr's are obliged to be honest and have a duty of care, but these websites and leaflets should have some sort of duty to be upbeat and a bit more positive about the condition. They made it out like it was the end of the world and that just annoyed me! Why do they have to do that, I asked myself?
There is a lot of information out there and a most of it is good and leaflets that are good to read, they'll help you manage the condition and how to prepare for the future, but to be honest thats about it. Why don't they talk about moving on, rather than just managing the condition.
As time went on I became more aware of the condition and how it affects people
Surprisingly alot of people I know, knew about or knew someone who had it. I also started to notice TV programmes and news articles that had people with MS in them or had been diagnosed with it. Please refer to my section on "Why this site" where I expand further on the subject.